Comments on: 2 Things You Must Do to Treat and Cure Fibromyalgia http://www.releasefibromyalgia.com/2-things-you-must-do-to-treat-and-cure-fibromyalgia/ Tue, 20 Dec 2011 19:32:04 +0000 hourly 1 http://wordpress.org/?v=3.0.1 By: admin http://www.releasefibromyalgia.com/2-things-you-must-do-to-treat-and-cure-fibromyalgia/comment-page-1/#comment-654 admin Wed, 08 Jun 2011 22:55:34 +0000 http://www.releasefibromyalgia.com/?p=384#comment-654 Interesting - so that scar needs to be healed somehow. Is it possible for you to go to a naturopathic physician? Or a physical therapist? I don't think any bodywork can be started until that scar is good. Interesting – so that scar needs to be healed somehow. Is it possible for you to go to a naturopathic physician? Or a physical therapist? I don’t think any bodywork can be started until that scar is good.

]]> By: Rik http://www.releasefibromyalgia.com/2-things-you-must-do-to-treat-and-cure-fibromyalgia/comment-page-1/#comment-653 Rik Tue, 07 Jun 2011 15:10:29 +0000 http://www.releasefibromyalgia.com/?p=384#comment-653 Well, this might be too much info, but the surgeries were for a pilonidal sinus (it's almost like a abscess). The first time it happened I was in my first year of high school and I woke up with an extremely painful lump the size of a golf ball. So that night I had to go to the hospital and they removed it, but then 2 months later I had to have it done again. The second time was a lot worse because it was basically just a huge hole about 6 inches long that was stitched up. Needless to say that surgery didn't work either. It kept coming back once or twice each month, but I didn't want the surgery again, so I just dealt with it for about 4 years. And then BAM I get a full time job that I love, and 7 months in it comes back so bad that I had to take a week and a half off work and I could barely move. So I had surgery that February (which I got extremely sick after. The hospital never told me what happened, and my family doctor has no idea, but after some very thorough research I believe it was toxic shock syndrome, cause by the fact that home care thought it would be a good idea to leave a blood soaked bandage on there for 5 days before coming in) but again, that surgery didn't work, so I had it re-done again that August, and that time was horrible. There were no stitches or anything; just a gaping hole that home care would come poke around inside every day. I've been lucky so far with this one though, because it hasn't come back yet, but on the down side it never fully healed, so the scar is VERY tender (can be quite painful at times) and if I move the wrong way or something like that, it rips open. So I'm pretty much stuck in a loop here, but I'm used to it. Sorry for such a long comment again ^_^ Once I get going it's hard to shut me up. Well, this might be too much info, but the surgeries were for a pilonidal sinus (it’s almost like a abscess). The first time it happened I was in my first year of high school and I woke up with an extremely painful lump the size of a golf ball. So that night I had to go to the hospital and they removed it, but then 2 months later I had to have it done again. The second time was a lot worse because it was basically just a huge hole about 6 inches long that was stitched up. Needless to say that surgery didn’t work either. It kept coming back once or twice each month, but I didn’t want the surgery again, so I just dealt with it for about 4 years. And then BAM I get a full time job that I love, and 7 months in it comes back so bad that I had to take a week and a half off work and I could barely move. So I had surgery that February (which I got extremely sick after. The hospital never told me what happened, and my family doctor has no idea, but after some very thorough research I believe it was toxic shock syndrome, cause by the fact that home care thought it would be a good idea to leave a blood soaked bandage on there for 5 days before coming in) but again, that surgery didn’t work, so I had it re-done again that August, and that time was horrible. There were no stitches or anything; just a gaping hole that home care would come poke around inside every day. I’ve been lucky so far with this one though, because it hasn’t come back yet, but on the down side it never fully healed, so the scar is VERY tender (can be quite painful at times) and if I move the wrong way or something like that, it rips open. So I’m pretty much stuck in a loop here, but I’m used to it. Sorry for such a long comment again ^_^ Once I get going it’s hard to shut me up.

]]> By: admin http://www.releasefibromyalgia.com/2-things-you-must-do-to-treat-and-cure-fibromyalgia/comment-page-1/#comment-652 admin Mon, 06 Jun 2011 18:53:30 +0000 http://www.releasefibromyalgia.com/?p=384#comment-652 Thank YOU Rik for your comment - so why did you have the surgery on your tailbone in the first place? Thank YOU Rik for your comment – so why did you have the surgery on your tailbone in the first place?

]]> By: Rik http://www.releasefibromyalgia.com/2-things-you-must-do-to-treat-and-cure-fibromyalgia/comment-page-1/#comment-651 Rik Fri, 03 Jun 2011 20:46:01 +0000 http://www.releasefibromyalgia.com/?p=384#comment-651 Hi there ^_^ I REALLY wish I could have come across your site a LOT sooner than just now. Anyhow, I figure I'll start with the basics; I'm a 21 year old guy, who was diagnosed with Fibromyalgia 2 and a half years ago - and now walks with a cane - following a series of surgeries on my tailbone. After the first surgery, I got VERY sick, and ended up in the hospital for a few days. When I was discharged, I began noticing things that were different. Why was I waking up every hour with pain seemingly everywhere? Why did it hurt to walk, or even move? Why did I feel like crap all the time? Needless to say after some time fumbling around with the family doctor, I got referred to a specialist 4 hours away that I have to see every 3 months just to be told I need an increased dosage of Cymbalta, or that he wants to start markane injections on my next visit. I noticed you pointed out that the 2 things you need to do are body work, and to get happy. I wish it were a lot easier to actually get happy, but I'm doing my best. Not that I don't feel the need to be happy, but all the things that brought me happiness are things I can't really do anymore (when this happened, I had just graduated high school, got a full time job that I loved, started my dream of getting a band together, and getting myself ready to go to college and start my life. Needless to say that didn't exactly go as planned. Sorry for bogging you down with a ton of reading. Basically I just wanted to say thanks a TON for providing such useful information ^_^ (It's amazing that none of the doctors I've seen have EVER suggested any of it) Well... I guess that's not ENTIRELY true; my specialist suggested yoga, and told me I need to keep moving. Nobody has ever suggested anything to me about the headaches, the "pins and needles" feeling, the light sensitivity, or any other alternative medicines rather than the "big-pharma" junk like Cymbalta, Lyrica, Codeine Contin, and things like Topomax. It's really inspiring to see someone overcome the gargantuan obstacle that is Fibromyalgia, and I've had it set in my mind since day 1 that I will overcome this. Now I just have the positive reinforcement I need to keep me motivated to get rid of it. Thanks again for having such a helpful site, and hopefully by the next time I write here, I'll be MUCH better than I am today ^_^ Cheers from Ontario, Canada!! Rik Hi there ^_^
I REALLY wish I could have come across your site a LOT sooner than just now.
Anyhow, I figure I’ll start with the basics;
I’m a 21 year old guy, who was diagnosed with Fibromyalgia 2 and a half years ago – and now walks with a cane – following a series of surgeries on my tailbone. After the first surgery, I got VERY sick, and ended up in the hospital for a few days. When I was discharged, I began noticing things that were different. Why was I waking up every hour with pain seemingly everywhere? Why did it hurt to walk, or even move? Why did I feel like crap all the time?
Needless to say after some time fumbling around with the family doctor, I got referred to a specialist 4 hours away that I have to see every 3 months just to be told I need an increased dosage of Cymbalta, or that he wants to start markane injections on my next visit.
I noticed you pointed out that the 2 things you need to do are body work, and to get happy.
I wish it were a lot easier to actually get happy, but I’m doing my best. Not that I don’t feel the need to be happy, but all the things that brought me happiness are things I can’t really do anymore (when this happened, I had just graduated high school, got a full time job that I loved, started my dream of getting a band together, and getting myself ready to go to college and start my life. Needless to say that didn’t exactly go as planned.
Sorry for bogging you down with a ton of reading.
Basically I just wanted to say thanks a TON for providing such useful information ^_^ (It’s amazing that none of the doctors I’ve seen have EVER suggested any of it) Well… I guess that’s not ENTIRELY true; my specialist suggested yoga, and told me I need to keep moving. Nobody has ever suggested anything to me about the headaches, the “pins and needles” feeling, the light sensitivity, or any other alternative medicines rather than the “big-pharma” junk like Cymbalta, Lyrica, Codeine Contin, and things like Topomax.
It’s really inspiring to see someone overcome the gargantuan obstacle that is Fibromyalgia, and I’ve had it set in my mind since day 1 that I will overcome this.
Now I just have the positive reinforcement I need to keep me motivated to get rid of it.
Thanks again for having such a helpful site, and hopefully by the next time I write here, I’ll be MUCH better than I am today ^_^
Cheers from Ontario, Canada!!
Rik

]]> By: admin http://www.releasefibromyalgia.com/2-things-you-must-do-to-treat-and-cure-fibromyalgia/comment-page-1/#comment-640 admin Wed, 27 Apr 2011 07:34:58 +0000 http://www.releasefibromyalgia.com/?p=384#comment-640 Thanks for your comment. :) Thanks for your comment. :)

]]> By: Anomale http://www.releasefibromyalgia.com/2-things-you-must-do-to-treat-and-cure-fibromyalgia/comment-page-1/#comment-638 Anomale Mon, 25 Apr 2011 12:35:20 +0000 http://www.releasefibromyalgia.com/?p=384#comment-638 Well, It doesnt look like anyone has blogged here for quite sometime. Anyhoo, I AM HAPPY! I have fibromyalgia and I am happy! So if there is anyone who comes across this blog late at night or in despair, drifting in the loneliness of the cybernet then just know, "it will all be alright". No matter what doctors tell you and no matter how badly you feel right now, it will ALL be alright. Well, It doesnt look like anyone has blogged here for quite sometime. Anyhoo, I AM HAPPY! I have fibromyalgia and I am happy! So if there is anyone who comes across this blog late at night or in despair, drifting in the loneliness of the cybernet then just know, “it will all be alright”. No matter what doctors tell you and no matter how badly you feel right now, it will ALL be alright.

]]> By: admin http://www.releasefibromyalgia.com/2-things-you-must-do-to-treat-and-cure-fibromyalgia/comment-page-1/#comment-582 admin Sun, 24 Oct 2010 03:28:13 +0000 http://www.releasefibromyalgia.com/?p=384#comment-582 Hi Carol, thank you so much for your comment. I really appreciate your words and your thanks. Sometimes these days I do forget why I even started this website - I forget what having fibro was like and I forget the pain and the horrible frustration and what feeling crappy all the time was like. and then I read something like this message from you and I think "oh yeah, I remember how that was ... it was horrible" ... so thank you. It also helps me remember to be so very greatful for the painfree life I have now. :) I wish you the very, very best, and I know you will get better. Keep in touch please :) Hi Carol, thank you so much for your comment. I really appreciate your words and your thanks. Sometimes these days I do forget why I even started this website – I forget what having fibro was like and I forget the pain and the horrible frustration and what feeling crappy all the time was like.

and then I read something like this message from you and I think “oh yeah, I remember how that was … it was horrible” … so thank you. It also helps me remember to be so very greatful for the painfree life I have now. :)

I wish you the very, very best, and I know you will get better. Keep in touch please :)

]]> By: Carol http://www.releasefibromyalgia.com/2-things-you-must-do-to-treat-and-cure-fibromyalgia/comment-page-1/#comment-581 Carol Sat, 23 Oct 2010 03:56:52 +0000 http://www.releasefibromyalgia.com/?p=384#comment-581 Hello Lisa, I have had fibro for 5 very long and painful years. Also, I don't remember many sentimental events these past 5 years either. I know you can relate. I have searched and searched for ways to feel better while dealing with fibro. After doctors and specialist visits, I had given up on them. I always felt strongly deep in my heart fibro could be reversed I just didn't know where to begin. At times it has been hard to comprehend this idea. Recently I asked a friend who lives on the other side of the country ( I'm in NC), if he felt that fibro could be reversed and he said, "definitely yes". So I started looking around and you are the only one who believes as I. I can't believe I didn't find you years ago. I am not able to buy your book as of yet, the economy hit my family hard. But I have started doing many things you suggest. I will eventually do everything you suggest will help. I agree with you 100%. I am looking forward to the day that I will be fibro free and that is thanks to you. I am proud of you for being so brave to stand alone on this. From the bottom of my heart, I thank you for sharing. Where would many of us be without your website, in a dread of living the rest of our lives in this pain. I know I DO NOT want to live another year in pain. Again, thank you sweet girl for all your hard work!!!!, and for helping me. P.S. I think mine developed after someone dieing in my arms, then cancer, (I am a survivor, had a total hysterectomy at 39.) Then I was told my daughter was high risk suicidal from post partum depression. I think the last one was the straw that broke the camels back. There were other things that happened many years ago as a child. I think these events of life were more than my mind and body could cope with and fibro reared its ugly head. Hello Lisa,
I have had fibro for 5 very long and painful years. Also, I don’t remember many sentimental events these past 5 years either.
I know you can relate. I have searched and searched for ways to feel better while dealing with fibro. After doctors and specialist visits, I had given up on them. I always felt strongly deep in my heart fibro could be reversed I just didn’t know where to begin. At times it has been hard to comprehend this idea. Recently I asked a friend who lives on the other side of the country ( I’m in NC), if he felt that fibro could be reversed and he said, “definitely yes”. So I started looking around and you are the only one who believes as I. I can’t believe I didn’t find you years ago.
I am not able to buy your book as of yet, the economy hit my family hard. But I have started doing many things you suggest. I will eventually do everything you suggest will help. I agree with you 100%.
I am looking forward to the day that I will be fibro free and that is thanks to you. I am proud of you for being so brave to stand alone on this. From the bottom of my heart, I thank you for sharing. Where would many of us be without your website, in a dread of living the rest of our lives in this pain. I know I DO NOT want to live another year in pain.
Again, thank you sweet girl for all your hard work!!!!, and for helping me.
P.S. I think mine developed after someone dieing in my arms, then cancer, (I am a survivor, had a total hysterectomy at 39.) Then I was told my daughter was high risk suicidal from post partum depression. I think the last one was the straw that broke the camels back. There were other things that happened many years ago as a child. I think these events of life were more than my mind and body could cope with and fibro reared its ugly head.

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